Chlamydia: Lived Experience Report

What we did

The project was formed of 3 phases. 

Phase 1: We co-designed a survey, developed with Sussex Sexual Health Team, which was promoted on social media. Analysed responses. Recruited young people for Phase 2.

Phase 2: Conducted interviews with 15 young people to gather deeper insights. Recruited young people for Phase 3.

Phase 3: Created a report outlining data analysis from Phase 1 & 2. Ran focus groups with six young people to co-design a social media campaign to raise awareness and share information.

Key Findings

1. Barriers to Testing:

   • Lack of awareness and knowledge about chlamydia testing.
   • Stigma, embarrassment, and fear of judgment.
   • Concerns about confidentiality.
   • Cultural and religious restrictions.

2. Preferred Sources of Information:

   • Young people primarily seek sexual health information online or via social media.
   • Schools and GPs are secondary sources, though school education is often deemed insufficient.

3. Perceptions and Knowledge:

   • Many respondents demonstrated limited understanding of STIs, testing processes, and consequences of untreated chlamydia.
   • While some had good knowledge of STI prevention (e.g., using condoms), misconceptions were noted, especially among males who trusted their partners to the extent of not testing unless symptomatic.

4. Experience with Testing Services:

   • Mixed responses about sexual health services, with some praising confidentiality and ease, while others highlighted difficulties in accessing appointments and embarrassment in interactions.

5. Survey Insights:

   • From 185 young respondents, 56% rated their sexual health knowledge as good, but gaps in specific areas like testing guidelines were noted.
   • Over half had used the online testing service, yet many cited barriers like lack of awareness, time constraints, and mistrust.