Your experiences of living with Fibromyalgia
What is Fibromyalgia?
Fibromyalgia has many symptoms that tend to vary from person to person. The main symptom is widespread pain.
Fibromyalgia is a chronic condition that causes widespread musculoskeletal pain, accompanied by fatigue, sleep, memory, and mood issues. It’s often described as a long-term pain disorder that affects the way the brain and spinal cord process pain signals.
The exact cause is unknown, it’s believed to involve a combination of genetic predisposition, infections, physical or emotional trauma, and psychological factors.
Completing our survey
We want to better understand the challenges and barriers people living with Fibromyalgia face when accessing health and wellbeing services, and what could improve this experience.
Understanding Fibromyalgia survey
We also extend a warm welcome to carers, family members, and other significant individuals who support someone to share their journeys too.
Thank you so much and we look forward to hearing from you.
The survey closes: Friday 22 May 2026.
